Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Paracinthesis due to ascites
claudine2863
Legacy
in Side Effects
Hi I was diagnosed with stage 3 slow growing Ovarian cancer in 2015, had surgery, but no chemo. The cells that were left behind are chemo resistant so I take a hormone blocker and I'm having a recurrence. Just wondered if anyone else also has this, and do they have to have their stomach drained frequently due to malignant cancer fluid?
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Comments
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Hello @claudine2863 - welcome to the chat site and thank you for sharing the thoughts on paracinthesis and ascites.
I hope you are able to get the treatment and support you need.
You may want to review the past chat topics (we are well over 4 pages long now, with each topic having multiple pages)
Hope you can join us on Teal Tuesdays for the live chat at 7:00 PMCST
I 'll also private message you.0 -
@claudine2863 Hello I too have had recurrence and each time I have had to have multiple paracentesis. I received chemotherapy treatments which helped to get rid of the fluid eventually. I do not know about your situation as you say the cancer cells are resistant. Maybe you should ask your doctor about receiving chemotherapy for the fluid dry up. I have used drugs called Taxol and two platinum based drug called Carboplatin and Cisplatin. Two different issues as I see it. The cancer cells and the fluid build up. Please enquire.0
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Hi and thanks for responding. The cells are slow growing and hormonal, ER doesn't usually respond to chemotherapy.
I was on 2 different hormone blockers to block the Estrogen, but not very effective.0
