Funding for lynparza

Anyone having to pay out of pocket for lynparza. Its so hard to get insurance to pay. 

Comments

  • @Laurie ; I am not using it but I understand there is a program that is run through Astra Zeneca, the manufacturer that helps to cover the costs.  Please ask your doctor or hospital about it.  
  • FlowergirlFlowergirl Mod Vol
    Hi @Laurie - you may also find more information on the Lynparza / Olaparib topic
  • AstraZeneca covered mine when the benefit company didn’t. You should ask your doctor about it.
  • Hi @Laurie @TealSister @CurlyHair @Flowergirl

    Here is the latest information about funding for Lynparza.  Each of the provinces are now deciding whether or not to cover the cost of Lynparza.  Some may say yes, others may say no.  

    Until these decisions are made, the process for patients wanting to access Lynparza remains:

    • A doctor prescribes the drug (indication for BRCAm ovarian)
    • Patient is enrolled in AstraZeneca’s Patient Support Program for information on financial coverage, including coordination of coverage at 1-877-280-6208
    • AstraZeneca will continue to provide the drug free of charge until that person’s province has it listed on the formulary. In the case that the patient has private insurance, then her private insurance may cover it with AZ kicking in the 20% co-pay.

     Please discuss this with your doctor and make sure you are enrolled in the AstraZeneca's Patient Support Program.

  • Thank you @Marilyn for providing the recent details. I'll be sure to pass on to our local in person support group.
  • For those of you not following along on Twitter, this was posted a few days ago.

    Treatment news: Quebec and Yukon have approved public funding of Lynparza for certain cases of recurrent BRCA-mutated #ovariancancer. Remaining provinces and territories are continuing deliberations and we are hopeful that this treatment will soon be available across the country.

    9:01 AM - 19 Jul 2018
  • What about non brca
  • Exactly @Laurie - we are hopeful that all provinces will cover this as "treatment" in the future!
  • Hi @Laurie.  Please see the post in the Lynparza discussion regarding the outline for funding.  

    "Health Canada has approved this drug only for the "maintenance treatment of adult patients with platinum-sensitive
    relapsed (PSR) BRCA-mutated (germline or somatic) high grade serous epithelial ovarian, fallopian tube or primary peritoneal cancer who are in response (complete response or partial response) to platinum-based chemotherapy.(Platinum-sensitive relapse is defined as disease progression occurring at least 6 months following completion of platinum chemotherapy.)"  

    As far as I know, this means that Lynparza is not an option if the cancer is platinum resistant or non BRCA status. 

    Has your doctor suggested that you should take Lynparza?

  • I am BRCA negative and my Dr. has suggested Lynparza.  My insurance will not pay for it so I am considering paying for it myself. 
  • Hi @amyc.  I'm sure that will be a very difficult decision as it is quite expensive.  Is your cancer considered platinum sensitive?
  • Yes, it is considered Platinum sensitive.  I will see my doctor tomorrow.  I would the grateful to hear anyone's experience, insight or suggestions.   :D 
  • Message me if you can
  • @amyc ; Based upon what I know of the drug I think you need to ask your doctor to go through Astra Zeneca themselves for the funding.  Your doctor should be able to help you with that.  Take care 
  •  AstraZeneca covered mine when the benefit company didn’t. I am platinum sensitive and not brca positive. The dr. filled out the paperwork and benefits denied coverage. based on my family income (not including my disability pay from insurance) it was covered by AstraZeneca.  hope this helps
  • amyc did you have any luck getting the lynparza
  • amycamyc
    edited August 13
    I have not had any luck.  My benefits will not pay for it as it is not on the list in Alberta.  The drug company will cover 20% of $9000 per month.  I am considering phoning them again as my mind is a bit clearer having some time to recuperate from chemo.

  • Wishing you all the best @amyc
  • Hi @Laurie.  You have indicated that your status is BRCA negative.  Is your disease platinum sensitive or platinum negative?
  • Hi I’m BRCA negative but platinum sensitive and have just started on Lynparza.  My insurance is covering 80% and Lynparza helped with the balance through their patient assistance program.  
  • That is good news to hear for you @Nancy1
  • @amyc ; I suggest you get your doctor to look into Astra Zeneca(manufacturer) funding it or call them first yourself and then take the information to your doctor.  Good luck.
  • I have talked to Astra Zeneca they are only providing 20%.  Also, talked to the Alberta Health Minister.  Olaparib is now on the Cancer Outpatient Schedule which means it will be covered for BRCA Platinum sensitive.  However, it needs to be on the Drug Benefit list to be covered by my Benefits provider.   
  • Here is the update:

    #BritishColumbia and #Alberta now fund #Lynparza for women in recurrence with platinum-sensitive BRCA-mutated high-grade serous epithelial #ovariancancer. These provinces join Quebec, Ontario, Yukon and the Non-Insured Health Benefits Program in offering public funding for this approved treatment.

  • Im in ontario. Brca neg . still paying
  • Jule_PJule_P
    edited September 19
    I took Lynparza for nearly two years, but in all the research I'd read of it, the conclusions were that it didn't change outcomes but that it did change the progression free period such that you could enjoy a longer period of remission. Survival was prolonged by several months at best. But, I haven't seen the numbers in a while. 
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