Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Olaparid Clinical Trial
Is anyone on the clinical trial for Olaparid. I just had my first recurrence after 2 years, almost to the day. I have been offered the chance to take part in the Clinical Trial for Olaparid, and I just want to know of anyone else in this trial and how they are doing with it.
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Hi @lakelady3 - so hear of your recurrence. I hope you find lots of support here as there are several ladies on the drug or are participating in the trial. I'll also private message you.
It is a bit difficult to find - Here is the link to the details of one of the trials for those that are interested.
https://www.clinicaltrials.gov/ct2/show/study/NCT02983799?term=D0816L00003&recrs=ab&cond=Ovarian+Cancer&cntry=CA&rank=1&show_locs=Y
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Hi @lakelady3 and @Flowergirl . There is a discussion already started about this drug but you may not have recognized the name - Lynparza. Olaparib is the technical name for the drug and Lynparza is the name of the drug that is now being used for marketing purposes - it does get confusing! I have edited the title of this discussion to include both names of the drug to help people like yourself find the information you are looking for. Try this link
https://ovdialogue.ovariancanada.org/discussion/56/lynparza-olaparib#latest
We also have a guide for women dealing with a recurrence called, Still By Your Side. You can order it here:
http://ovariancanada.org/living-with-ovarian-cancer/support-resources
Hope this helps!
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