Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Clear cell treatment
Good MOrning ladies has any one had any experience on having here chemo weekly rather than every 3 weeks . This will be my 4th time with chemo if they decide that i need it again fighting for 4 years now . I had read somewhere that the side affects are a little milder with the weekly .
I have clear cell stage 3b .
I have clear cell stage 3b .
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Hello @cavy.. welcome to the site. You may find others here that have clear cell diagnosis. It seems that treatments vary according to the individual and what the medical team suggests.0
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Hi @cavy I see that you haven't had many responses so not sure if you are receiving the weekly chemo or not. There are a few women who have been diagnosed with clear cell but I am not sure if they have had similar experience. @kittycat @MarieRocks @kastoyles @jiselle16 @KarenL - do you have any thoughts for cavy?0
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Hi @cavy! I had treatment for clear cell - stage 1C. My surgical oncologist (who is also a medical oncologist) recommended I have weekly intraperitoneal (through the abdomen) chemo. I ended up getting a second opinion with a medical oncologist who recommended intravenous chemo every 3 weeks. At the end of the day, both of them said they were adequate treatments and I would ultimately get the same amount of chemo by the time I was finished. So for me, I made a decision to go with the chemo every three weeks for 6 rounds. Part of the reason was that I was getting treatment at a cancer clinic an hour from home, so it wasn't very convenient to go every week. I also felt pretty strong at the time (I was also pretty young at 31 years old) - so I felt like I could handle a stronger dose - and it turns out I was right. Plus the thought of having 18 chemo treatments in total just seemed like a lot to me. Although I have heard the side effects are much more mild with the weekly, and I guess I was lucky as I didn't have too many side effects. But do what's best for you!0
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Hi: I was diagnosed with stage 1C clear cell in April 2014. I did not know there were options of frequency of chemo. In May of 2014 I started weekly treatments. I was 61 years old at the time and both my husband and I were retired so although treatment was 45 minutes from home, it was doable. I did well on the chemo after an initial allergic reaction. I had minimal side effects and they have cleared up since then. I have regained my energy and have tried to keep active and physically fit. So far all is well. Hopefully it will continue to go well.1
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@cavy @Jan @jiselle16, I had my hysterectomy Nov. 2016 and I got my pathology report 4 weeks later. I was 60 at the time. It said stage 2 ovarian cancer, adenocarcinoma, 10% of the cells well clear cell. But some months later, the resident was presenting my case to the senior doc, and said 'stage 1C' . Anyway, apparently they changed the staging protocols?
I had intavenous chemo, 6 sessions, 3 weeks apart. I had 25 radiation treatments. Mostly things are going well. I have to wear compression pantyhose for my lymphedema, but I have calcific tendonitis in one shoulder. So I haven't been wearing the pantyhose as all that pulling and tugging hurts the shoulder. The hospital clinic suggested I go back to the walk in clinic for a physiotherapy appointment.0
