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Re: Another surgery, I am scared
I knew this day would come, I guess it is hard to be prepared. I do not feel too bad physically, so mostly I live in a kind of denial. You and I have been in a lot of same place, I appreciate your support, I too am here if you need to talk ❤️
Have a wonderful day! Snowing here.....
Re: OUR COLLABORATIVE BOOK
Re: Niraparib and Avastin trial
Take care
Re: Neuropathy vs muscle aches post chemo
@Alwayslearning what an interesting story! Sounds like laughter truly was the best medicine in your case! Keep us posted on how you’re doing. ☺️
Re: Neuropathy vs muscle aches post chemo
So interesting @Alwayslearning thank you for sharing that. The power of laughter is probably much greater than we even can imagine. I had something similar when I was doing chemo. I went home and started taking more of my multi vitamin both day and night. The next day, it was up enough that I could have my treatment. I do like how you handled it better. Nothing better than some good belly laughs! 🤣
Re: @GloHo
@Strongwoman removing the ascites and keeping my pigtail in was the best decision . As it does keep accumulating it would make no sense to do a new incision every time. Now I go to my local clinic and get it drained twice weekly. For two months, I barely ate now I’m devouring hospital food if you can believe it.
Re: @GloHo
Gosh @Lorraine5845 That is a lot to take in. Refeeding Syndrome eh? I had to look that one up and find out more about that. Do you or they know how this started for you? I am thankful they know what it is and that they are going the slow and low route for re-introducing food for you. I would not want you to have a setback so soon again.
It is funny how family/friends respond when one is having an absence of food or have been ill as well. They all want to feed you. I know that for me, after I have a bowel obstruction, I have to be careful and slow with introducing food back into my diet. When my parents were here for my last one, they wanted me to eat and drink. It was very hard for them to grasp that I would but in time because it is how my body works. So, you are not alone in this!
How has the ascites been since being in hospital and how is it being managed? I know it is very uncomfortable from other ladies posts on the forum. Have you been able to get out of bed and move around either alone or with assistance?
I am sending you some healing hugs and will keep hoping that your recovery keeps moving forward. Hang in there. 💕
Re: Neuropathy vs muscle aches post chemo
@HorseGirl I am not on Bevacizumab. I did forget to mention that my Paclitaxel and Carboplatin were both reduced by 10% from 1st infusion in light of the PN. My magnesium levels are good so likely why she wasn't concerned.
I will tell you one story though..my Neutrophils were 0.8, three days prior to my 2nd infusion. I had to do bloodwork the morning of the infusion. If they were not at 1.0 or higher, there would have been a delay of a week and blood retest. I asked if there was anything I could do physically to increase them e.g., increase protein intake etc. Sadly the answer was no. One of my husband's relatives who had personal experience in this area participated in a laughter & music therapy session as a way of improving Neutrophil counts. While the literature was mixed on results, she saw a dramatic rise in Neutrophils. So between my first blood draw and my 'day of', I watched a lot of 'belly laugh' comedy shows and listened to podcasts that made me laugh. The morning of my infusion, my Neutrophil count was 4.8!!! That's a HUGE increase over 3 days. One just never knows the power that some things can have on our general well being.
Stay strong everyone and thanks for sharing the learnings!
Re: Neuropathy vs muscle aches post chemo
Exactly! You need to try and do whatever you think will help and go from there. It is the only way you will know if it will help you @Alwayslearning Myth, heresay, whatever……try and experiment. You will find what works for you.
Glad to hear that you are finding ways to deal with the neuropathy and are moving. Remember our bodies are meant to move. It may be difficult at first but baby steps and patience. It will come. 💖
Yes, many of my former patients have purchased a Theragun. They aren't for everyone but those they work for and like is good. You may want to try a CBD bath bomb and see if that helps. Most of the cannabis stores have them. I know I have used them when I have been aching and generally uncomfortable and it helped a lot. Something to think about…..
Please keep us posted and so happy to see you engaged on the forum.
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Ohh @Lorraine5845 I am saddened to hear you are still in hospital. It would be very difficult to not go down a rabbit hole with that news and finding. I am thankful you contacted your pyschologist and hopefully got some help or felt better after. Glad to hear the electrolytes are returning to more normal as well.
Yes, I hear you on the "some things you need to talk with someone outside your family and friend circle." It is why this group/forum is helpful and for me, my Palliative Day Program at Hospice. Both of these places, I have found I can bring forth some of that stuff I wouldn't dare say to family/friends because I feel like it would worry them more. Please know we are here, and it is a safe space to let forth anything you are feeling. We will be waiting for when you are ready to do so.
In the meantime, go for a walk on your floor, try and find some strength to do it and get those legs working. It is amazing how fast we can lose motion in our bodies due to inactivity from illness. My elderly Aunt and I were discussing this very thing yesterday. I find when I end up in hospital, I start slowly with my lap around the floor and the frequency and slowly build it up. Maybe it's my wishful thinking also that if they (nursing) sees me enough times they might encourage the doctor to let me go home too. 😉😅