Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Best Of
Re: Let's get started! Come and introduce yourself
@nadiaC..your first treatment might be a long day..pack a treatment bag (it's what I called mine). Pack a drink or two..a few snacks..your phone, tablet or iPad...or I'm a little old school so I had a crossword and seduko. Oh and earbuds...I usually slept for the first 3 hours of my treatment because of the drugs before treatment...made me sleepy..I just asked for a warm blanket and had a great nap...you'll do good!
Bluebird
2
Re: Let's get started! Come and introduce yourself
@nadiaC....I am so glad you have found this group. I too am a survivor of 3C high grade serous... February 2017. And gal, I'm still here to tell the tale. Like you, I was new to the community I live in so my darling, stoic, ever cheerful husband and I were pretty well on our own. It sure did bring us even closer together. My surgery went well. Other than a blip at the start of my chemo (turned out I am allergic to Paclitaxel and had to have a different drug combined with the Carboplatin) I pretty well sailed through chemo. Of course no Covid at the time so Wayne was there for every treatment except for two and amazing how effective Facetime can be when you need that 'high touch' connection. But rest assured the staff in the chemo room, no matter which cancer center, are simply amazing. Beyond administering the medication, their priority is to make the experience as easy for you as is possible. So make sure you communicate with them...they need to know if you're experiencing any discomfort. And they're very adept at responding and reacting to any necessary changes to make it better for you. But whatever the case, I quickly found how lucky I was to have been diagnosed when I was. Yes, later on in the journey but at a time where there have been so many advances made in treatment of our disease. In fact, I am a further beneficiary of all of that research having relapsed at the end of 2018 but having been holding my own thanks to two little pills I take, twice a day.
Is this all scary? Heck yah! But this community is here for you....use it whenever you need to. And check the Walk of Hope site. You may find a Walk in your community where you can connect with other survivors...or reach out to the OCC Regional Manager for your area. She or he may know of a local support group to connect with.
Is this all scary? Heck yah! But this community is here for you....use it whenever you need to. And check the Walk of Hope site. You may find a Walk in your community where you can connect with other survivors...or reach out to the OCC Regional Manager for your area. She or he may know of a local support group to connect with.
Fearless
1
Re: Let's get started! Come and introduce yourself
Welcome @cbot. I'm sorry that you have an ovarian cancer diagnosis..how have your chemo treatments been for you? I'm glad you have found us...it is a wonderful site to ask questions and discuss. Of course use your oncology team for the medical questions but we all have gone through some kind of treatment so we understand and can support you. You can also order the book..By Your Side from Ovarian Cancer Canada..sorry I dont have the link..its a free book with lots of info...and depending on where you live..there might be a local support group for ovarian cancer...
Bluebird
1
Re: Let's get started! Come and introduce yourself
@Flowergirl- I have ordered a copy of By Your Side. It will be sent as soon as possible,,,..delayed due to this pesky virus going around.... Good day today. Happy Canada Day! My VERY supportive daughter will be spending the day with her crew (4 of my 6 awesome grandkids!) That opportunity will close next week as she will be going back to work and I will be getting my second chemo treatment. Hanging in!
Re: New App for Alberta Cancer Patients
@Jackie...it will be so good when the new cancer centre in Calgary is open...hopefully for you, you wont have to use it...maybe just to sneak a peek 😊
Bluebird
1
Re: Let's get started! Come and introduce yourself
@cbot Welcome to the group you will find a lot of support and useful information here. I was diagnosed with endometrioid ovarian cancer in November 2011. I underwent several surgeries as well as chemotherapy. I hope your chemotherapy is going well, the worst side effects for me were fatigue, nausea and low blood counts. Before I stared my first chemo cycle, I attended an orientation session for new patients at my cancer centre.
Jackie
1
Re: Let's get started! Come and introduce yourself
Welcome @cbot @nadiaC and @kattie666 . My name is Shellyza, and I was diagnosed with 1C clear cell ovarian cancer in September 2018 . I am now 32, and this past February , I marked one year in remission. I also work as an oncology specialized pharmacist at the hospital where I was treated. I have found that my perspectives have changed quite a bit after my cancer diagnosis, treatment and recovery - sending you sincere best wishes.
ssajwani
3
Re: Let's get started! Come and introduce yourself
Hi @nadiaC..know that were with you through this!
Bluebird
1
Re: Let's get started! Come and introduce yourself
Hi I'm Shelly. Diagnosed with grade 3C metastatic ovarian cancer May 2018. I've had 6 cycles of chemo and debulking surgery and now on Bevacizamab therapy. I have been lucky that my cancer was diagnosed quickly and treatment started. I am amazed how many women have ovarian cancer but more amazing is how much support within the OC community. I guess I needed to know that I'm not alone with this. And I'm interested in all the differences in treatment and options.
Bluebird
1
Re: Let's get started! Come and introduce yourself
Hi @nadiaC..you've gone thru a big surgery. It takes awhile for you to recover..and naps are your best friend. And chemo...you'll find everyone goes through it differently even the exact same treatment...hope you'll breeze through your treatment. 😊
Bluebird
2