Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?

OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).

The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!

Best Of

Re: Let's get started! Come and introduce yourself

@kattie666 - We lived in Brantford at the time, so we had a little drive to get there, but were glad to be close enough to Juravinski. My doctor will be retiring around the same time I reach the five-year mark. God-willing I never have to set foot in the cancer center after that! The staff were all wonderful and attentive and caring, but it was nice to ring the bell after my last treatment and say good-bye to the chemo suite!

kastoyles

Re: Let's get started! Come and introduce yourself

@kastoyles w live in Cambridge. Juravinski is great so far. Had 2nd infusion on Thursday. Things are going well, tired but feeling ok. It appeared that they have started some renovations in the chemo suite, Registration has been moved to the hall just off the elevator. #2 down 4 to go!!

kattie666

Re: Treatment concerns

Thanks to everyone for your support and suggestions! I will be going for follow up blood work on Monday to see if I can proceed with a third cycle on Thursday. Will also look into the cold packs.

cbot

Re: fingernail woes

Hey @bluebird, @kastoyles and @angel27, my face is fuzzier than ever too since chemo - and I agree that being hairless was pretty darn convenient :-)

maggiemae

Re: Bad taste in mouth all the time

Thank you for all your suggestions, I’ll try them. I’ve started drinking Club Soda with my meals and feel that helps a bit. Ice cream tastes fine, hurray.

bluesky

Re: Let's get started! Come and introduce yourself

@nadiaC You made it through your first treatment! YAY! Emotionally, for me, it was the hardest because I just didn't know what to expect. Physically, as you progress, the side effects get a little stronger each time - but, for me, they were still manageable. I found sleeping at night to be a problem. I'd wake up for a few hours and then fall back to sleep. Thank God for my Ipad! LOL and Pearl's Perils. I always had a nap, usually in the morning and sometimes in the afternoon too. You'll be a Warrior Queen and barrel on through!

kastoyles

Re: Let's get started! Come and introduce yourself

Hi @Bluebird! I did have my first treatment today and it was all very smooth. The nurses were amazing. Not only on top of things but also really helpful towards each other. The room was spacious and bright. My husband was allowed to be there this time which was nice. The Benadryl made me really loopy and then really tired, so I didn’t do much other than lie back with my eyes closer and ear plugs stuffed in my ears. Overall it was a long day but quite smooth. I’m hope the coming days will be manageable too. I feel a bit bloated right now but otherwise more ‘normal’ than I’ve felt in weeks (which no doubt is the steroids). I am glad treatment rooms are somewhat communal. It gave me strength to see others managing their treatments and to be with them. Thanks so much for asking about today! I hope you’re doing well!

nadiaC