Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Best Of
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Thanks @Flowergirl Keep well and have a great week. Night night 🦋
Linda
1
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Thanks @Flowergirl. I participated in the Cancer Chat this afternoon. Went very well and the 90 minutes just flew by.
Linda
1
Re: Let's get started! Come and introduce yourself
@Melodie Hello I am not sure if this suggestion will help but I would like to suggest that you call the Princess Margaret Hospital in Toronto and speak with someone in their Gynecological Oncology Clinic to see if you can consult with them about your situation. I understand you live elsewhere but it might be of help. They would probably need a consult but can your GP be a referral if they accept? I am thinking along the lines of a second opinion. The number for the clinic is 416-946-2220.
I am including the link to their website for reference.
https://www.uhn.ca/PrincessMargaret/PatientsFamilies/Clinics_Tests/Gynecologic_Oncology
Please give it a try. Good luck
I am including the link to their website for reference.
https://www.uhn.ca/PrincessMargaret/PatientsFamilies/Clinics_Tests/Gynecologic_Oncology
Please give it a try. Good luck
Re: Let's get started! Come and introduce yourself
@Melodie I forgot to provide the link for the list of drugs that are out there for ovarian cancer. I have provided the link from the National Cancer Institute.
https://www.cancer.gov/about-cancer/treatment/drugs/ovarian
https://www.cancer.gov/about-cancer/treatment/drugs/ovarian
Re: Let's get started! Come and introduce yourself
@Melodie i am sending you so much love. I don't know all the protocols but it seems some ladies here have had years of chemos to keep things at bay. Is it possible to get more opinions from other oncologists?
Whatever comes we are here to support you
Whatever comes we are here to support you
red1976
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Re: Let's get started! Come and introduce yourself
Melodie, I completely agree with red1976. I would definitely seek the opinion of other oncologists and I would also consult with my personal physician and I would also seek out any integrative oncologists in your area. Integrative oncologists can be a valuable source of information. In the Toronto area there must me many of these specialists. We are here to listen, support you and be available at any time. You are in my thoughts and prayers!❤️
Re: Let's get started! Come and introduce yourself
Welcome @Melodie to the chat site. Sorry you are dealing with these issues and know we are here to support you.
Hoping you are comfortable as you finish the IP sessions.
Yes, please ask about all the possibilities for clinical trials and chemo options.
Hoping you are comfortable as you finish the IP sessions.
Yes, please ask about all the possibilities for clinical trials and chemo options.
Re: Let's get started! Come and introduce yourself
Hi Laurie! You have come to the right place for additional support! At this point your stress and fear is at its highest and your mind is all over the place. You worry about your family. You feel like and emotional roller coaster. I can personally tell you it will get better with time. Take it one step at a time. Get some fresh air, take a walk and do not be afraid to reach out to your family and friends for help and that emotional support you need especially at this time. Take Care!
Re: Live Telephone Discussion! Thursday, September 20 at 1:30pm Eastern Time
Hi @Marilyn Sorry I missed the call. I was out of the country. I’ve been using OV Dialogue since March and it has been a huge support to me. Prior to that I had not connected with anyone other than my oncology team. The discussions have been a tremendous help. Thank you so much !! Warmest regards, Linda
Linda
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Re: Newbie on this website
Hello @Anicel - welcome to the chat site. Thank you for sharing your experiences.
It is nice you were able to attend the walk. Will be thinking of you on Friday as well.
You are welcome to post your story on your profile page and you may want to review the Let's get started topic to view everyone's experiences. We hope you will find much support here.
It is nice you were able to attend the walk. Will be thinking of you on Friday as well.
You are welcome to post your story on your profile page and you may want to review the Let's get started topic to view everyone's experiences. We hope you will find much support here.