Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Best Of
Re: Live Telephone Discussion! Thursday, September 20 at 1:30pm Eastern Time
Hi @Marilyn Sorry I missed the call. I was out of the country. I’ve been using OV Dialogue since March and it has been a huge support to me. Prior to that I had not connected with anyone other than my oncology team. The discussions have been a tremendous help. Thank you so much !! Warmest regards, Linda
Linda
1
Re: Newbie on this website
Hello @Anicel - welcome to the chat site. Thank you for sharing your experiences.
It is nice you were able to attend the walk. Will be thinking of you on Friday as well.
You are welcome to post your story on your profile page and you may want to review the Let's get started topic to view everyone's experiences. We hope you will find much support here.
It is nice you were able to attend the walk. Will be thinking of you on Friday as well.
You are welcome to post your story on your profile page and you may want to review the Let's get started topic to view everyone's experiences. We hope you will find much support here.
Re: Newbie on this website
Hi @Anicel. I hope your appointment went well. I will check to see who else on the site has granulosa cell ovarian cancer and get back to you...
Re: Funding for lynparza
Thank you for sharing that story @amyc - it will be most helpful when others need to go this route.
Yes, advocating can take so much energy!
Yes, advocating can take so much energy!
Re: Live Telephone Discussion! Thursday, September 20 at 1:30pm Eastern Time
Hi @Flowergirl , thanks for this information. I am in Oakville so it's strange I have not seen much out there, I will keep my eye out.
Luci22
1
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Does anyone else have a Ladyball event this month.?? There's one here on Thursday and I get to go. Hoping for a fun night.
red1976
1
Re: I’m new
@DeltaRed Nice to 'meet' you I was diagnosed just a month before you. I'm doing round 3 of 6 chemos on Tuesday. This board is a great resource. We are in it together
red1976
1
I’m new
I was diagnosed with ovarian cancer at beginning of November 2017. I’m now 65 years and stage 3C. There was a huge gap after diagnosis and treatment waiting to see oncologist, then waiting for chemo program to start. I suffered with excessive asites and had to be tapped many times. Once chemo started I could feel my body returning to a more normal activity state. I’ve had three chemos and 13 fluid drainage taps. Cumulative total of fluid was 35 litres. The fluid has stopped generating. I’m now waiting for my fourth chemo and my surgery date of March 13.
I am happy to be a part of this discussion group. It helps to not feel alone. Any new information and support gives me strength.
I am happy to be a part of this discussion group. It helps to not feel alone. Any new information and support gives me strength.
DeltaRed
1
Re: Anyone try Naturopathic Treatment & what's been your experience with it?
Hi @Luci22 I would also suggest that the both the naturopath and oncologist need to be open and respectful of the fact that you are seeing both of them and what the other professional may or may not suggest. @UnPickNot has outlined how she has handled this with all of her health care team which is great. Thanks @UnPickNot for sharing your experience.
Re: Anyone try Naturopathic Treatment & what's been your experience with it?
Wading into deep waters here - and a safe place to do it! @Luci22
I was diagnosed in 2014 at stage 3C. I had the full surgery with multiple "ectomies", then chemo. I did very well and entered a clinical trial in the summer. 4 years later and I am just finishing chemo after a recurrence.
Through all of it, I have been working with a Naturopath. (I have been using complimentary medicine for 30 years now). I have been open and honest with all of my doctors - oncology, naturopathy, and family - and they are all aware and supportive of my decisions and choices. I have taken my oncologists recommendations to my naturopath and vice versa. They ask good questions and raise valid points. There is so much information out there, and it often conflicts. Remember that you can get conflicting advice from 2 oncologists, it is not just from different disciplines. If you are seeking information, consider your source carefully. Trust your sources carefully and make your own decisions.
You are the one who has to live with the results.
I was diagnosed in 2014 at stage 3C. I had the full surgery with multiple "ectomies", then chemo. I did very well and entered a clinical trial in the summer. 4 years later and I am just finishing chemo after a recurrence.
Through all of it, I have been working with a Naturopath. (I have been using complimentary medicine for 30 years now). I have been open and honest with all of my doctors - oncology, naturopathy, and family - and they are all aware and supportive of my decisions and choices. I have taken my oncologists recommendations to my naturopath and vice versa. They ask good questions and raise valid points. There is so much information out there, and it often conflicts. Remember that you can get conflicting advice from 2 oncologists, it is not just from different disciplines. If you are seeking information, consider your source carefully. Trust your sources carefully and make your own decisions.
You are the one who has to live with the results.